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Ann Turnbull

Ed.D., Distinguished Professor - (SPED)  • Special Education Website
Director - Beach Center on Disability (Beach Center)

Turnbull, Ann

Academic Degrees:

  • Ed.D. , Special Education (Mental Retardation) , University of Alabama , 1972
  • M.Ed. , Special Education (Mental Retardation) , Auburn University , 1971
  • B.S.Ed. , Special Education (Mental Retardation) , University of Georgia , 1968

Specialization(s):
Family quality of life, family-professional partnerships, community inclusion, and knowledge translation.

Acrobat PDF Document Curriculum Vitae

Contact Information:
1200 Sunnyside Ave.
Haworth Hall, Room 3111H
University of Kansas
Lawrence, KS  66045-7534

Phone:(785) 864-7608

E-mail: turnbull@ku.edu

Fax: (785) 864-5825

Links:
http://www.beachcenter.org

Courses

 Note: Syllabi found on any SOE site may not be the most recent. Contact the faculty member for an update.
SPED 854 Family and Interprofessional Collaboration Course Description Syllabus  
SPED 991 Family Supports and Outcomes Course Description Syllabus  


Recent Work:


Awards/Honors
  • Higuchi/KU Endowment Association Research Award (2007-2008)
  • National Down Syndrome Congress Research Award (2007)
  • Council for Exceptional Children, Division on Developmental Disabilities, Burton Blatt Humanitarian Award (2006)
  • The Arc of the U.S.A, Board of Directors (2006-2007)
  • University of Kansas, Marianna and Ross Beach Distinguished Professor  (2006) 
  • University of Kansas, School of Education, "Making a Difference" Award (for distinguished leadership, research, teaching, and service) (2005)
  • Camphill Association of North America, Elizabeth M. Boggs National Leadership Award (2004)
    The highest award given by the Association.
  • The Arc of the U.S., Distinguished Research Award (2004)
  • Century Award in Mental Retardation (given by a national consortium of the seven leading organizations in the field of developmental disabilities for the 36 individuals who have made the most significant impact in the field of mental retardation/developmental disabilities over the 20th Century) (1999)
  • Louise E. Byrd Graduate Educator Award (1999)
  • Rose Fitzgerald Kennedy Leadership Award (1990)
  • The Arc of the U.S. Educator of the Year (with Professor H.R. Turnbull) (1982)
Editorial Activities
  • Editorial Board, Infants and Young Children, 2001-present.
    Book Chapters
    • Turnbull, A.P., Summers, J.A., Gotto, G., Stowe, M., Beauchamp, D., Klein, S., Kyzar, K. et al. (in press). Fostering wisdom-based action through Web 2.0 communities of practice: Case study of early childhood family support community of practice. Infants and Young Children.
    • Turnbull, A.P. (2008).  Family quality of life: Moving from the traditional to the progressive paradigm of disability in research and services.  In. B. Rogé, D. Barthélémy, G. Magerotte (Eds.), Améliorer la qualité de vie des personnes autistes.  DUNOD, Paris.
    • Turnbull, A.P., Turnbull, H.R., Summers, J.A., & Poston, D. (2008). Partnering with families of children with developmental disabilities to enhance family quality of life. (2008). In H.P. Parette & G.R. Peterson-Karlan (Eds.), Research-based practices in developmental disabilities (2nd ed., pp. 481-499). Austin, TX: Pro-ed.
    • Turnbull, H.R. & Turnbull, A.P. (2007). A History of the Beach Center on Disability. In Schiefelbusch, R.L. & Schroeder, S. (Eds.). Cluster of Miracles: The History of the Life Span Institute. Baltimore Paul H. Brookes Publishing Co.
    • Turnbull, A.P., Zuna, N., Turnbull, R., Poston, D., & Summers, J.A. (2007). Families as partners in educational decision-making: Current implementation and future directions. In S. Odom, R. Horner, M. Snell, & J. Blacher (Eds.), Handbook of developmental disabilities (pp. 570-590). New York, NY: Guilford Publications, Inc.
    • Turnbull, A., Poston, D., Minnis, P., & Summers, J.A. (2007). Focus on families:  Providing supports and services that enhance quality of life. In I. Brown & M. Percy (Eds.), Intellectual and developmental disabilities (pp. 561-571). Baltimore: Paul H. Brookes Publishing.
    • Turnbull, R. & Turnbull, A. (2007). Foreword: Belonging, Believing, and Becoming. In Carter, E. Faith Communities and Inclusion. Baltimore. Paul H. Brookes Publishing CO, pp. xiii-xvii.
    • Brown, I., Galambos, D., Poston, D., & Turnbull, A. (2007). Introduction to person-centered and family-centered support. In I. Brown & M. Percy (Eds.), Intellectual and developmental disabilities (pp. 351-361). Baltimore: Paul H. Brookes Publishing.
    • Turnbull, A.P., Turnbull, H.R., Summers, J.A., & Poston, D. (2007). Partnering with families of children with developmental disabilities to enhance family quality of life. In G. Peterson-Karlan, R. Ringlaben, & P. Parette, (Eds.), Research-based and emerging practices in developmental disabilities (pp. 481-499). Austin, TX: Pro-Ed.
    • Turnbull, A.P., & Turnbull, H.R. (2006). Family-professional partnerships.  In M.E. Snell, & F. Brown (Eds.), Instruction of students with severe disabilities (6th ed.) (pp. 28-66). Upper Saddle River, NJ: Merrill/Prentice Hall.
    • Turnbull, A.P., & Turnbull, H.R. (2005). Parent-professional relationships. In M.E. Snell & F. Brown (eds.). Instruction of students with severe disabilities (6th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.
    • Turnbull, A.P., Turnbull, H.R., Agosta, J., Erwin, E., Fujiura, G., Singer, G., & Soodak, L. (2005). Support of families and family life across the lifespan. In C. Lakin & A.P. Turnbull (Eds.), National goals and research for persons with intellectual and developmental disabilities. (pp. 217-256). Washington, DC: American Association on Mental Retardation.
    • Sugai, G., Horner, R. H., Dunlap, G., Heineman, M., Lewis, T.J., Nelson, C. M., Scott, T., Liaupsin, C., Sailor, W., Turnbull, A.P., Turnbull III, H. R., Wickham, D., Wilcox, B., & Ruef, M. (2004). Applying Positive Behavior Support and Functional Behavioral Assessment in Schools. In Bambara, L., Dunlap, G. & Schwartz, E. (Eds.) Positive behavior support: Critical articles on improving practice for individuals with severe disabilities (pp. 356-368). Pro-ed and TASH.
    • Turnbull, A.P., Turnbull, R., Poston, D., Beegle, G., Blue-Banning, M., Diehl, K., Frankland, C., Mische Lawson, L., Lord, L., Marquis, J., Park, J., Stowe, M., & Summers, J.A. (2004).  Enhancing quality of life of families of children and youth with disabilities in the United States.  In A.P. Turnbull, I., Brown, & H.R. Turnbull (Eds.), Family quality of life:  An international perspective (pp. 51-100).  Washington, DC:  American Association on Mental Retardation.
    • Turnbull, H.R., Turnbull, A., & Brown, I. (2004). Epilogue. In Turnbull, A., Brown, I. , & Turnbull, H. R. (eds.). Families and people with mental retardation and quality of life: International Perspectives. Washington, DC: American Association on Mental Retardation (monograph series).
    • Carr, E., Dunlap, G., Horner, R.H., Koegel, R.L., Turnbull, A.P., Sailor, W., Anderson, J.L., Albin, R.W., Koegel, L.K. , & Fox, Lise. (2004). Positive behavior support: Evolution of an applied science. In Bambara, L., Dunlap, G. & Schwartz, E. (Eds.). Positive behavior support: Critical articles on improving practice for individuals with severe disabilities (pp. 45-58). Pro-Ed and TASH.
    • Warren, J. S., Edmonsen, H. M., Griggs, P, Lassen, S. R., McCart, A., Turnbull, A. P., Sailor, W. (2004). Urban applications of schoolwide positive behavior support: Critical issues and lessons learned. In Bambara, L., Dunlap, G. & Schwartz, E. (Eds.). Positive Behavior Support: Critical Articles on Improving Practice for Individuals with Severe Disabilities (pp. 376-387). Pro-Ed and TASH.
    Books
    • Turnbull, A.P., Turnbull, H.R., & Wehmeyer, M. (2007). Exceptional lives: Special education in today's schools (5th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall. (Also Chinese version of Exceptional Lives)
    • Turnbull, A.P., Turnbull, H.R. (1986-2006) (4 eds). Families, Professionals, and Exceptionality: A special partnership. Upper Saddle River, NJ. Pearson/Merrill-Prentice Hall.
    • Turnbull, H.R., & Turnbull, A.P. (1978-2006) (5 eds). Free appropriate public education:  Law and the education of children with disabilities. Denver, CO: Love.
    • Lakin, K.C., & Turnbull, A.P. (Eds.). (2005). National goals and research for people with intellectual and developmental disabilities. Washington, DC: American Association on Mental Retardation.
    • Turnbull, H.R., Turnbull, A.P., Shank, M., & Smith, S. (2004). Exceptional lives: Special education in today's schools (4th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.
    • Turnbull, A. P., Brown, I., & Turnbull, H. R. (Eds.). (2004). Families and people with mental retardation, and quality of life. Washington, DC: American Association on Mental Retardation.
    • Turnbull, R., Turnbull, A., Shank, M., Smith, S., & Leal, D. (2002). Exceptional lives: Special education in today's schools (3rd Ed). Merrill: Columbus, OH.
    Journal Articles
    • Turnbull, A.P., Turnbull, H.R., Blue-Banning, M., Morningstar, M.E., Parent, W., & Poston, D.J. (submitted for review, 2007). Preparing students transitioning to adulthood to direct their own funding: Implications for research, services, and policy. Submitted to Exceptional Children.
    • Saito, Y., & Turnbull, A. (2007). Augmentative and alternative communication practice in the pursuit of family quality of life: A review of the literature. Research & Practice for Persons with Severe Disabilities, 32(1), 50-65.
    • Turnbull, A.P., Summers, J.A., Lee, S.H., & Kyzar, K. (2007). Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 346-356.
    • Turnbull, A.P., Summers, J.A., Turnbull, R., Brotherson, M.J., Winton, P., Roberts, R., Snyder, P., et al. (2007). Family supports and services in early intervention: A bold vision. Journal of Early Intervention, 29(3), 187-206.
    • Turnbull, H.R., Stowe, M.J., Agosta, J., Turnbull, A.P., Schrandt, M.S., & Muller, J.F. (2007). Federal family and disability policy: Special relevance for developmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 114-120.
    • Turnbull, H.R., Wehmeyer, M.L., Turnbull, A.P., & Stowe, M. (2007). Growth attenuation and due process. Research and Practice for Persons with Severe Disabilities, 31, 348-351.
    • Wang, M., McCart, A., & Turnbull, A. (2007). Implementing positive behavior support with Chinese American families: Enhancing cultural competence. Journal of Positive Behavioral Interventions, 9(1), 38-51.
    • Summers, J.A., Marquis, J., Mannan, H., Turnbull, A.P., Fleming, K., Poston, D.J., Wang, M., & Kupzck, K. (2007). Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programs. International Journal of Development, Disability, and Education, 54(3), 319-338.
    • Lee, S.H., Palmer, S.B., Turnbull, A.P., Wehmeyer, M.L. (2006).  A model for parent-teacher collaboration to promote self-determination in young children with disabilities.  TEACHING Exceptional Children, 38(3), 36-41.
    • Hoffman, L., Marquis, J.G., Poston, D.J., Summers, J.A., & Turnbull, A. (2006). Assessing family outcomes: Psychometric evaluation of the family quality of life scale. Journal of Marriage and Family, 68, 1069-1083.
    • Mannan, H., Summers, J.A., Turnbull, A.P., & Poston, D.J. (2006). Family outcomes in early childhood programs: A review of outcome measures. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 219-228.
    • Humphrey, K.R., Turnbull, A.P., & Turnbull, H.R. (2006). Impact of the Adoption and Safe Families Act on youth and their families: Perspectives of foster care providers, youth with emotional disorders, service providers, and judges. Children and Youth Services Review, 28(2), 113-132.
    • Purcell, M.L., Turnbull, A., & Jackson, C.W. (2006). Linking early childhood inclusion and family quality of life: Current literature and future directions. Young Exceptional Children, 9(3), 10-19.
    • Wang, M., Summers, J.A., Turnbull, A., Little, T., Poston, D., & Mannan, H. (2006). Perspectives of fathers and mothers of children in early intervention programmes in assessing family quality of life. Journal of Intellectual Disability Research, 50(12), 977-988.
    • Humphrey, K. R., Turnbull, A.P., & Turnbull, H. R. (2006). Perspectives of foster-care providers, service-providers, and judges regarding privatized foster-care services. Journal of Disability Policy Studies, 17(1), 2-17. 
    • Turnbull, A., & Turnbull, R. (2006). Self-determination: Is a rose by any other name still a rose? Research and Practice for Persons with Severe Disabilities, 31(1), 83-88.
    • Summers, J.A., Poston, D.J., Turnbull, A.P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005).  Conceptualizing and measuring family quality of life.  Journal of Intellectual Disability Research, 49(10), 777-783.
    • Smith-Bird, E., & Turnbull, A.P. (2005). Linking positive support outcomes to family quality of life. Journal of Positive Behavioral Interventions, 7(3), 174-180.
    • Kasahara, M., & Turnbull, A.P. (2005). Meaning of family-professional partnerships: Japanese mothers' perspectives. Exceptional Children, 71(3), 249-265.
    • Summers, J.A., Hoffman., L., Marquis, J., & Turnbull, A.P., Poston, D., & Nelson, L.L. (2005). Measuring the quality of family-professional partnerships in special education services. Exceptional Children, 72(1), 65-82.
    • Summers, J.A., Hoffman., L., Marquis, J., Turnbull, A.P., & Poston, D. (2005). Parent satisfaction with their partnerships with professionals across different ages of their children. Topics in Early Childhood Special Education, 25(1), 48-58.
    • Riffel, L.A., Wehmeyer, M.L., Turnbull, A.P., Lattimore, J., Davies, D., Stock, S., & Fisher, S. (2005). Promoting independent performance of transition-related tasks using a palmtop PC-based self-directed visual and auditory prompting system. Journal of Special Education Technology, 20(2), 5-14.
    • Turnbull, A.P. (2004). "Wearing two hats": Morphed perspectives on family quality of life. Mental Retardation, 42(5), 383-399.
    • Frankland, C., Turnbull, A., Wehmeyer, M., & Blackmountain, L. (2004). An exploration of the self-determination construct and disability as it relates to the Dine´ (Navajo) culture. Education and Training in Developmental Disabilities, 39, 191-205.
    • Lord-Nelson, L.G.L., Summers, J.A., & Turnbull, A.P. (2004). Boundaries in family-professional relationships: Implications for special education. Remedial and Special Education, 25, 153-165.
    • Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2004). Calidad de vida familiar: Un studio cualitativo. Siglocero, 35 (3), 31-48.
    • Wang, M., Mannan, H., Poston, D., Turnbull, A.P., Summers, J.A. (2004). Parents' perceptions of advocacy activities and their impact on family quality of life. Research and Practice for Persons with Severe Disabilities, 29(2), 144-155.
    • Wang, M., Turnbull, A.P., Summers, J.A., Little, T.D., Poston, D.J., Mannan, H., & Turnbull, R. (2004). Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research & Practice for Persons with Severe Disabilities, 29(2), 82-94.
    • Jackson , C.W., & Turnbull, A.P. (2004). The impact of deafness on family quality of life. Topics in Early Childhood Special Education, 24, 15-29.
    • Poston, D.J., & Turnbull, A.P. (2004). The role of spirituality and religion in family quality of life. Educational Training in Mental Retardation and Developmental Disabilities, 39, 95-108.
    • Kim, K.H., & Turnbull, A. (2004). Transition to adulthood for students with severe intellectual disabilities: Shifting toward person-family interdependent planning. Research & Practice for Persons with Severe Disabilities, 29, 53-57.
    Presentations
    • Turnbull, A.P. (2008, October). Enhancing the Likelihood that Families and Professionals Will Experience Trusting Partnerships. Keynote at Trusting Partnerships Conference, Rotorua, New Zealand.
    • Turnbull, A.P. (2008, October). Family Support Community of Practice: Fostering Wisdom-Based Action. Workshop at Trusting Partnerships Conference, Rotorua, New Zealand.
      • Turnbull, A.P. (2008, July). Creating Whole Lives and Accessing Resources in Ways That Promote Inclusive, Self-determined Lives. Pre-conference institute at the 36th Annual National Down Syndrome Congress Convention, Boston, MA.
      • Turnbull, A.P. (2008, July). Creating Whole Lives for Adults Through Integrated Supports and Services. Workshop at the 36th Annual National Down Syndrome Congress Convention, Boston, MA.
      • Turnbull, A.P. (2008, July). Early Childhood Family Support Community of Practice: Fostering Wisdom-Based Action. Keynote at American Association of Home-Based Early Interventionist Conference, Atlanta, GA.
      • Turnbull, A.P. (2008, September). Effective Networking Activities and Mentoring Experiences. Presentation for AAIDD and AUCD Webinar for Students and Early Career Professionals.
      • Turnbull, A.P. (2008, May). Family-Professional Partnerships in Ensuring Successful Transitions at the Early Childhood Level. Presentation at 50th Anniversary Special Professional Development Day for Teachers and Administrators, Lawrence, KS.
      • Turnbull, A.P. (2008, July). Living Life Inclusively, Communities of Practice as a Way of Moving Beyond Information to Wisdom-Based Action. Keynote at the Eighth National Early Childhood Inclusion Institute, Chapel Hill, NC.
      • Turnbull, A.P. (2008, March). Making Transitions During Early Childhood: Fostering Wisdom-Based Action. Workshop at State-of-Science Conference: Using Wisdom-Based Action to Support Families of Young Children with Special Needs, Washington, DC.
      • Turnbull, A.P. (2008, March). The Copernican Revolution in Knowledge Translation for Families.  Keynote at State-of-Science Conference: Using Wisdom-Based Action to Support Families of Young Children with Special Needs, Washington, DC.
      • Turnbull, A.P. (2008, July). Visioning an Ideal Community of Practice to Increase the Likelihood that Young Children and Families Live Life Inclusively. Workshop at the Eighth National Early Childhood Inclusion Institute, Chapel Hill, NC.
      • Turnbull, A.P. (2008, July). Visioning How the Family Support Community of Practice Can be as Beneficial as Possible to AAHBEI Members. Workshop at American Association of Home-Based Early Interventionist Conference, Atlanta, GA.
      • Turnbull, A.P. (2007, May). Adults with Intellectual Disabilities Living Inclusive and Self-Determined Lives through Individual Control of Funding and Creative Use of Resources: ‘Nuts and Bolts' of Supports to Make it Happen. Presentation at AAIDD 131st Annual Meeting, Atlanta, GA.
      • Turnbull, A.P. (2007, October). Early Childhood Family Support Community of Practice: Fostering Evidence-Based Action. Presentation at DEC 2007: The 23rd Annual International Conference on Young Children with Special Needs and Their Families.
      • Turnbull, A.P. (2007, December). Early Childhood Family Support Community of Practice: Fostering Wisdom-Based Action. Presentation at OSEP National Early Childhood Conference, Arlington, VA.
      • Turnbull, A.P. (2007, August). Enhancing Family Quality of Life: Thinking and Acting Wisely. Keynote presentation at National Down Syndrome Congress 35th Annual Convention, Kansas City, MO.
      • Turnbull, A.P. (2007, December). Family Quality of Life as an Outcome of Services for Families of Persons with Disabilities: Next Steps in Research and Measurement. Presentation at the International Society for Quality-of-Life Studies, San Diego, CA.
      • Turnbull, A.P. (2007, December). Family Quality of Life: From Conceptualization to Theory. Keynote presentation at the International Society for Quality-of-Life Studies, San Diego, CA.
      • Turnbull, A.P. (2007, November). Family Quality of Life: Research Supply and Research Demand. Distinguished Professor Lecture, Lawrence, KS.
      • Turnbull, A.P. (2007, October).  Future Trends in Consumer Expectations and Demands. Wworkstop at The Arc National Convention, Dallas, TX.
      • Turnbull, A.P. (2007, August). Living Inclusive and Self-Determined Lives. Workshop at National Down Syndrome Congress 35th Annual Convention, Kansas City, MO.
      • Turnbull, A.P. (2007, July). The Future is NOW!: Life Truly is Bigger Than We Ever Dreamed. Workshop at 18th Annual APSE National Conference, Kansas City, MO.
    Websites
    • Beach Center on Disability, University of Kansas Beach Center on Disability. http://www.beachcenter.org/
      The Beach Center on Disability strives to make a significant and sustainable difference in the quality of life of families and individuals affected by disability. The Center conducts research, provides training and technical assistance, and provides international, national, state, regional, and local service in collaboration with families who have members with disabilities, individuals with disabilities, the professionals and policy leaders who serve families and individuals, and members of the communities in which the families and individuals live.
    • Early Childhood Family Support Community of Practice, University of Kansas Beach Center on Disability. http://beachcop.beachcenter.org/CommunityBrowser.aspx?id=393&lang=en-US
      The mission of the Early Childhood Family Support CoP is to foster action on the part of families and practitioners in enhancing family quality of life. The CoP is a gathering place for families, practitioners, researchers, and policy leaders to address key issues related to family support at the early childhood level and to benefit from the synthesis of the best available research, family wisdom, and professional wisdom.
    • Life Span Institute, University of Kansas Schiefelbusch Institute for Life Span Studies. http://www.lsi.ku.edu/.
      The Schiefelbusch Institute for Life Span Studies (LSI) is one of the largest and most highly regarded human development and disabilities research centers in the country. The LSI brings together scientists of diverse disciplines to study human development from its genetic origins through the final stages of life. The LSI supports basic and applied research, treatment and assessment clinics, service coordination and delivery, consultation, and training-notably, training of the next generation of scientists. The Life Span Institute's 12 centers have more than 130 programs and projects active at any one time in Kansas as well as other states. Many projects directly serve individuals, families, and communities and are located in underserved Kansas City neighborhoods and rural Kansas counties.
    Current Grants/Projects
    • Turnbull, A.P., & Turnbull, H.R. (2008-2012). Leadership and Family-Professional Partnership Enhancement. U.S. Department of Education, OSERS, OSEP Special Education Personnel Preparation to Improve Services and Results for Children with Disabilities Program. $800,000.
      With a focus on preparing students with a specialization in family-professional partnerships, this USDOE four-year leadership training project will prepare five national leaders. Students will have a special emphasis in family theory and research, family supports and services, family policy, and technology-based knowledge mobilization. In addition to School of Education and Department of Special Education core courses, students will complete a minor in research and will actively participate in technology-based learning including online communities of practice and a wide variety of innovative Web 2.0 technologies.
    • Turnbull, A.P., Sailor, W., Turnbull, H.R., & Wehmeyer, M.L. (2006-2010).  Leadership and Outcomes in Education and Famliy Policy for Students with Significant Cognitive Disabilities. U.S. Department of Education, OSERS, OSEP Special Education Personnel Preparation to Improve Services and Results for Children with Disabilities Program. $800,000.
      This USDOE four-year leadership training grant focuses on preparing five national leaders to make substantial and sustainable improvements in long-term outcomes for students with significant cognitive disabilities and their families. Students will have a special emphasis in assessment quality, instructional quality, family support, and policy. Students will enroll in School of Education and Department of Special Education core courses, as well as complete a research minor. They will also engage in leadership practica associated with strategic roles at local, state, and national levels. To learn more, link to the Beach Center's Graduate Studies site. For further information contact Dr. Ann Turnbull (turnbull@ku.edu).
    • Turnbull, H.R., & Turnbull, A.P. (2003-2008). Rehabilitation Research and Training Center on Policies Affecting Families of Children with Disabilities. National Institute of Disability and Rehabilitative Research. $3,749,737.
      This five-year research, training, and dissemination project focuses on a comprehensive study of the impact of two policies on families. The first policy is the individual/family control of Medicaid funding, and the second policy is Part C of IDEA in terms of the provision of family supports and services. Research is occurring at federal, state, and local levels in Kansas and North Carolina to particularly focus on the outcomes of family quality of life and family community integration. In addition to the research, extensive effort is being invested in developing Communities of Action to use the research results for system reform.
    • Turnbull, A.P. (2008-2013). National Early Childhood Training Enhancement Center. Office of Special Education Programs. $197,593.
      As a sub-contract from the University of North Carolina-Chapel Hill, this project, known as Project CONNECT, has the purpose of providing resources, training, and technical assistance to higher education faculty and other professional development specialists to foster inclusive early childhood services for young children with disabilities. CONNECT will work with both special education and general early childhood professional development specialists by developing nine curricular modules related to quality early childhood education for young children with special needs (birth-5 years). The Beach Center's sub-contract with Project CONNECT is to provide the family perspective throughout all nine modules and in particular in development of a module on providing family supports and services.
    • Turnbull, A. P., & Summers, J. (2007-2008) Investigating an Online Community of Practice: A proposal to develop an evidence base for knowledge syntheses and translation. National Institute on Disability and Related Research. $100,000.
      This Research Utilization Support and Help (RUSH) grant, which is a supplement for knowledge translation from the National Institute on Disability and Related Research, will be used to develop a web-supported national Community of Practice to focus on improving the quality and quantity of family support for families of young children with disabilities. The web-supported CoP will integrate the best available research with family values and wisdom and professional values and wisdom.