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Rud Turnbull LI.M., Distinguished Professor - (SPED)  • Special Education Website Director - Beach Center on Disability (Beach Center)
	Academic Degrees: LI.M. , Harvard Law School , 1969 LI.B./J.D. , The University of Maryland Law School , 1964 B.A. , The Johns Hopkins University , 1959 Specialization(s): Special education law, disability law, and public policy analysis. Curriculum Vitae Biography	Contact Information: 1200 Sunnyside Ave. Haworth Hall, Room 3111H University of Kansas Lawrence, KS  66045-7534 Phone:(785) 864-7610 E-mail: rud@ku.edu Fax: (785) 864-7600 Links: Budig Lecture Video Budig Lecture PowerPoint (ppt)

Recent Work:

Awards/Honors

• National Down Syndrome Congress Research Award (2007)
• Council for Exceptional Children, Division on Developmental Disabilities, Burton Blatt Humanitarian Award (2006)
• University of Kansas, Marianna and Ross Beach Distinguished Professor (2006)
• Kansas Federation of the Council for Exceptional Children Distinguished Public Service Award (2005)
• TASH Positive Contributions Award (2005)
• University of Kansas School of Education Making a Difference Award (for distinguished leadership, research, teaching, and service) (2005)
• Camphill Association of North America, Elizabeth M. Boggs National Leadership Award (2004)
  The highest award given by the Association.
• The Arc of the United States Franklin Smith National Leadership Award (2004)
  This is the highest award given by the Arc of the United States.
• University of Kansas, School of Education, Gene A. and Gretchen Budig Teaching Professorship in Special Education Award (2004-2005)
• American Association on Mental Retardation, Region V Century Award (2003)
• As a result of a 2000 survey of the colleagues of the editor of Remedial and Special Education, 162 persons were nominated by 17 professors of special education nationwide for their "unique contributions to the field of special education."  The list includes individuals from the 18th Century to the 21st Century.  I was among those listed.
• The "Century Award" (1999)
  Given to 36 individuals in the field of mental retardation, by seven professional and parent organizations, for "changing the course of history" during the 20th Century (given for my work in disability advocacy and parent empowerment). See Gould, M. J. (1999). The Great Lessons of the 20th Century, AAMR News & Notes, 12(4), 6-19.
• American Association on Mental Retardation, Distinguished Leadership Award(1997)
• International Council for Exceptional Children, Distinguished Public Service (1996)
  Given for my advocacy on behalf of students with disabilities, related to the unsuccessful attempt to reauthorize Individuals with Disabilities Education Act in 1995.
• Who's Who in America (1995-2007)
• University of Kansas, School of Education, Leadership Award (1995)
• Trustee Emeritus, Judge David L. Bazelon Center on Mental Health Law, Washington, DC (1993-2007)
• National Association of Private Residential Resources, National Leadership Award (1988)
• The ARC/USA (Association for Retarded Citizens, U.S.A.), Educator of the Year (with Dr. Ann P. Turnbull) (1982)

Editorial Activities

• Associate Editor, Journal of Special Education, 2003-2008.
• Associate Editor, Journal of Positive Behavioral Interventions, 1998-2008.
• Associate Editor, Journal of Religion, Disability, and Health, 1992-2008.
• Manuscript Reviewer, Research and Practice for Persons with Severe Handicaps (formerly, The Journal of the Association for Persons with Severe Handicaps), 1987-present.
• Manuscript Reviewer, Mental Retardation, 1982-present.

Book Chapters

• Turnbull, H.R. & Turnbull, A.P. (2007). A History of the Beach Center on Disability. In Schiefelbusch, R.L. & Schroeder, S. (Eds.). Cluster of Miracles: The History of the Life Span Institute. Baltimore Paul H. Brookes Publishing Co.
• Turnbull, A.P., Zuna, N., Turnbull, R., Poston, D., & Summers, J.A. (2007). Families as partners in educational decision-making: Current implementation and future directions. In S. Odom, R. Horner, M. Snell, & J. Blacher (Eds.), Handbook of developmental disabilities (pp. 570-590). New York, NY: Guilford Publications, Inc.
• Turnbull, R. & Turnbull, A. (2007). Foreword: Belonging, Believing, and Becoming. In Carter, E. Faith Communities and Inclusion. Baltimore. Paul H. Brookes Publishing CO, pp. xiii-xvii.
• Turnbull, H.R., Stowe, M.J., & Schrandt, M. (2007).  Public policy and developmental disabilities: A 35-year retrospective and a five-year prospective based on the core concepts of disability policy. In S. Odom, R. Horner, M. Snell, & J. Blacher (eds.). Handbook of Developmental Disabilities (pp. 15-34). New York: Guilford Publications.
• Turnbull, A.P., & Turnbull, H.R. (2005). Parent-professional relationships. In M.E. Snell & F. Brown (eds.). Instruction of students with severe disabilities (6th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.
• Turnbull, A.P., Turnbull, H.R., Agosta, J., Erwin, E., Fujiura, G., Singer, G., & Soodak, L. (2005). Support of families and family life across the lifespan. In C. Lakin & A.P. Turnbull (Eds.), National goals and research for persons with intellectual and developmental disabilities. (pp. 217-256). Washington, DC: American Association on Mental Retardation.
• Turnbull, H. R. (2005). What should we do for Jay? The edges of life and cognitive disability. In Gaventa, W.C. & Coulter, D. L. (eds).  End-of-life care: Bridging disability and aging with person-centered care (1-26).   Binghamton, NY: Haworth Pastoral Press
• Sugai, G., Horner, R. H., Dunlap, G., Heineman, M., Lewis, T.J., Nelson, C. M., Scott, T., Liaupsin, C., Sailor, W., Turnbull, A.P., Turnbull III, H. R., Wickham, D., Wilcox, B., & Ruef, M. (2004). Applying Positive Behavior Support and Functional Behavioral Assessment in Schools. In Bambara, L., Dunlap, G. & Schwartz, E. (Eds.) Positive behavior support: Critical articles on improving practice for individuals with severe disabilities (pp. 356-368). Pro-ed and TASH.
• Sugai, G., et al. (2004). Applying positive behavioral supports and functional assessment in schools. In L.M. Bambara, G. Dunlap, & I.S. Schwartz (Eds.), Positive behavior support: Critical articles on improving practice for individuals with severe disabilities . Baltimore, MD: TASH.
• Turnbull, A.P., Turnbull, R., Poston, D., Beegle, G., Blue-Banning, M., Diehl, K., Frankland, C., Mische Lawson, L., Lord, L., Marquis, J., Park, J., Stowe, M., & Summers, J.A. (2004).  Enhancing quality of life of families of children and youth with disabilities in the United States.  In A.P. Turnbull, I., Brown, & H.R. Turnbull (Eds.), Family quality of life:  An international perspective (pp. 51-100).  Washington, DC:  American Association on Mental Retardation.
• Turnbull, H.R., Turnbull, A., & Brown, I. (2004). Epilogue. In Turnbull, A., Brown, I. , & Turnbull, H. R. (eds.). Families and people with mental retardation and quality of life: International Perspectives. Washington, DC: American Association on Mental Retardation (monograph series).

Books

• Turnbull, A.P., Turnbull, H.R., & Wehmeyer, M. (2007). Exceptional lives: Special education in today's schools (5th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall. (Also Chinese version of Exceptional Lives)
• Turnbull, A.P., Turnbull, H.R. (1986-2006) (4 eds). Families, Professionals, and Exceptionality: A special partnership. Upper Saddle River, NJ. Pearson/Merrill-Prentice Hall.
• Turnbull, H.R., & Turnbull, A.P. (1978-2006) (5 eds). Free appropriate public education:  Law and the education of children with disabilities. Denver, CO: Love.
• Turnbull, R., Huerta, N., & Stowe, M.J. (2006).  The Individuals with Disabilities Education Act as Amended in 2004. Columbus, OH and Saddle River, NJ.  Pearson/Merrill-Prentice Hall.
• Turnbull, H.R., Turnbull, A.P., Shank, M., & Smith, S. (2004). Exceptional lives: Special education in today's schools (4th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.
• Turnbull, A. P., Brown, I., & Turnbull, H. R. (Eds.). (2004). Families and people with mental retardation, and quality of life. Washington, DC: American Association on Mental Retardation.
• Turnbull, A., Brown, I., & Turnbull, R. (2003). Family quality of life:  An introduction to conceptualization, measurement, and application. Washington, DC: American Association on Mental Retardation.
• Turnbull, R., Turnbull, A., Shank, M., Smith, S., & Leal, D. (2002). Exceptional lives: Special education in today's schools (3rd Ed). Merrill: Columbus, OH.
• Turnbull, H.R., Turnbull, A.P., Bronicki, G.J., Summers, J.A., & Roerder-Gordon, C. (1989 with revisions in reprints in 1991, 1992). Disability and the family: A guide to decisions for adulthood. Baltimore: Brookes.
• Turnbull, H.R., Biklen, D., Brooks, P., Boggs, E.M., & Ellis, J. (1981). The least restrictive alternative-Principles and practices. Washington, DC:  American Association on Mental Retardation.
• Turnbull, H.R. (Ed.). (1978). Consent handbook. Washington, DC:  American Association on Mental Retardation.
• Turnbull, A.P., & Turnbull, H.R. (Eds.). (1978). Parents speak out: Views from the other side of the two way mirror. Columbus, OH:  Merrill/Prentice Hall.

Journal Articles

• Turnbull, A.P., Turnbull, H.R., Blue-Banning, M., Morningstar, M.E., Parent, W., & Poston, D.J. (submitted for review, 2007). Preparing students transitioning to adulthood to direct their own funding: Implications for research, services, and policy. Submitted to Exceptional Children.
• Sailor, W., Stowe, M. J., Turnbull, H.R., & Kleinhammer-Tramill, J. (2007). A case for adding a social/behavioral standard to standards-based education with school-wide positive behavioral support as its basis. Remedial and Special Education, 28(6), 366-376.
• Turnbull, A.P., Summers, J.A., Turnbull, R., Brotherson, M.J., Winton, P., Roberts, R., Snyder, P., et al. (2007). Family supports and services in early intervention: A bold vision. Journal of Early Intervention, 29(3), 187-206.
• Turnbull, H.R., Stowe, M.J., Agosta, J., Turnbull, A.P., Schrandt, M.S., & Muller, J.F. (2007). Federal family and disability policy: Special relevance for developmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 114-120.
• Turnbull, H.R., Wehmeyer, M.L., Turnbull, A.P., & Stowe, M. (2007). Growth attenuation and due process. Research and Practice for Persons with Severe Disabilities, 31, 348-351.
• Stowe, M.J., Turnbull, H.R., Schrandt, M.S., & Rack, J. (2007). Looking to the future: Intellectual and developmental disabilities in the genetics era. Journal of Developmental Disabilities, 13(2), 1-64.
• Turnbull, H.R. (2007). Response to Vitello. Remedial and Special Education, 28(2), 69-71.
• Stowe, M.J., Turnbull, H.R., Pence, R., Rack, J., Schrandt, S. & Laub, L. (2007). The importance of attitudes toward understanding of disability and science in the age of genetics. Research and Practice for Persons with Severe Disabilities, 32(3), 190-206.
• Humphrey, K.R., Turnbull, A.P., & Turnbull, H.R. (2006). Impact of the Adoption and Safe Families Act on youth and their families: Perspectives of foster care providers, youth with emotional disorders, service providers, and judges. Children and Youth Services Review, 28(2), 113-132.
• Humphrey, K. R., Turnbull, A.P., & Turnbull, H. R. (2006). Perspectives of foster-care providers, service-providers, and judges regarding privatized foster-care services. Journal of Disability Policy Studies, 17(1), 2-17. 
• Turnbull, A., & Turnbull, R. (2006). Self-determination: Is a rose by any other name still a rose? Research and Practice for Persons with Severe Disabilities, 31(1), 83-88.
• Stowe, M.J., Turnbull, H.R., & Sublet, C. (2006). The Supreme Court, "Our Town," and disability policy: Boardrooms and bedrooms, courtrooms and cloakrooms. Mental Retardation, 44(2), 83-99.
• Stowe, M.J., Turnbull, H.R., & Umbarger, G.T. (2005). Connections among the core concepts of health policy and the core concepts of disability policy. Journal of Disability Policy Studies, 16(2), 74-83.
• Turnbull, H. R. (2005).  Individuals with Disabilities Education Act Reauthorization: Accountability and personal responsibility.  Remedial and Special Education, 26(6), 320-326.
• Turnbull, H.R. (2005). Response to Clark , A., "Writing on the Walls". Journal of Religion .
• Turnbull, H. R. (2005).  Testimony to Senate Committee on Health, Education, Labor, and Pensions, April 6, 2005: Health care provided to non-ambulatory persons. Research and Practice for Persons with Severe Disabilities, 30(1), 38-41.
• Umbarger, G.T., Stowe, M.J., & Turnbull, H.R. (2005). The core concepts of health policy affecting families who have children with disabilities. Journal of Disability Policy Studies, 15(4), 201-208.
• Turnbull, H. R. (2005). Theological, personal and universal: Responses to Iozzio, M. J. The writing on the wall: Alzheimer's disease. Journal of Disability, Religion, and Health, 9(6), 75-787.
• Turnbull, H.R. (2005). What should we do for Jay? The edges of life and cognitive disability: A policy analysis. Journal of Religion, Disability, and Health, 9(2), 1-26.
• Zuna, N., & Turnbull, R. (2004). "Imagine all the people, sharing.." or a (not so) modest proposal made on the eve of IDEA reauthorization. Research and Practice for Persons with Severe Disabilities, 29(3), 210-213.
• Turnbull, R. (2004). "Natural environment" and "lest restrictive environment": Why are they important. Birth through 5 News, 5 (4), 1-2. Storrs, CT: University of Connecticut and Connecticut Birth to Three System.
• Reichard, A., Sacco, T. M., & Turnbull, R. ( 2004). Access to health care for individuals with developmental disabilities from minority backgrounds, Mental Retardation, 42(6), 459-470.
• Reichard, A., & Turnbull, H.R. (2004). Perspectives of physicians, families, and case managers concerning access to health care by individuals with developmental disabilities. Mental Retardation, 42(3), 181-184.
• Wang, M., Turnbull, A.P., Summers, J.A., Little, T.D., Poston, D.J., Mannan, H., & Turnbull, R. (2004). Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research & Practice for Persons with Severe Disabilities, 29(2), 82-94.

Monographs

• Turnbull, H.R. (2007). Innovation and outcomes in developmental disabilities in North Carolina: Bottom-up innovation in response to top-down mandated transformation. Lawrence, KS: Beach Center on Disability, the University of Kansas.
• Turnbull, H.R. (2005). Individuals with Disabilities Education Act: Education and Welfare Reform, The Social Contract, Liberal and Conservative Narratives, and Challenges and Admonitions. Gene A. Budig Professorship Annual Lecture, School of Education: Lawrence, The University of Kansas.

Online Products

• Huerta, N. E., Stowe, M.J. & Turnbull, H.R. (2007). Free Appropriate Public Education Study Guide (2007). Denver, CO: Love Publishing Company. Available at the Beach Center on Disability Web site: http://www.beachcenter.org/resource_library/beach_resource_detail_page.aspx?intResourceID=763.

Other Resources

• Turnbull, R. (2007). Defining Family Support for Congressional Reauthorization of T. II, Developmental Disabilities Assistance and Bill of Rights Act.
• Turnbull, H. R., (2007). Innovation and Outcomes in Developmental Disabilities in North Carolina: Bottom-Up Innovation in Response to Top-Down Mandated Transformation.
• Stowe, Klein, & Turnbull, R., (2007). Recommendations from an Analysis of the 2007 Proposed Regulations for Part C of the Individuals with Disabilities Education Act, Early Intervention for Infants and Toddlers.

Presentations

• Turnbull, H.R. (2007,July). Communities of Practice: A Web-based Method for Educating Families and Practitioners Concerning Policy and Practice in Early Intervention. Presented at Seminar for Faculty and Masters Students in Special Education, Chongqing Normal University.
• Turnbull, H.R. (2007, July). Emerging Trends in Public Policy. Presented at Symposium for Faculty and Doctoral Students in Special Education related to U.S. Disability Policy, East China Normal University, Shanghai.
• Turnbull, H.R. (2007). Future Policy Opportunities and Challenges: Supporting Families and Advancing Their Control. Presented Joseph P. Kennedy, Jr. Foundation Public Policy Fellows Seminar, Washington D.C.
• Turnbull, H.R. (2007). Medicaid and Developmental Disabilities. Health Law Special Interest group, Kansas University Law School, Lawrence, KS.
• Turnbull, H. R. (2007, November). Our Town: The Supreme Court Encounters Disability. Presentation for Ross and Marianna Beach Distinguished Professorship Lecture, University of Kansas. (Accepted for publication in Kansas Journal of Law and Public Policy.)
• Turnbull, H.R. (2007). Partnerships between Family and Educators. Presented at Families Together, Topeka, KS.

Websites

• Beach Center on Disability, University of Kansas Beach Center on Disability. http://www.beachcenter.org/
  The Beach Center on Disability strives to make a significant and sustainable difference in the quality of life of families and individuals affected by disability. The Center conducts research, provides training and technical assistance, and provides international, national, state, regional, and local service in collaboration with families who have members with disabilities, individuals with disabilities, the professionals and policy leaders who serve families and individuals, and members of the communities in which the families and individuals live.
• Life Span Institute, University of Kansas Schiefelbusch Institute for Life Span Studies. http://www.lsi.ku.edu/.
  The Schiefelbusch Institute for Life Span Studies (LSI) is one of the largest and most highly regarded human development and disabilities research centers in the country. The LSI brings together scientists of diverse disciplines to study human development from its genetic origins through the final stages of life. The LSI supports basic and applied research, treatment and assessment clinics, service coordination and delivery, consultation, and training-notably, training of the next generation of scientists. The Life Span Institute's 12 centers have more than 130 programs and projects active at any one time in Kansas as well as other states. Many projects directly serve individuals, families, and communities and are located in underserved Kansas City neighborhoods and rural Kansas counties.

Current Grants/Projects

• Turnbull, A.P., & Turnbull, H.R. (2008-2012). Leadership and Family-Professional Partnership Enhancement. U.S. Department of Education, OSERS, OSEP Special Education Personnel Preparation to Improve Services and Results for Children with Disabilities Program. $800,000.
  With a focus on preparing students with a specialization in family-professional partnerships, this USDOE four-year leadership training project will prepare five national leaders. Students will have a special emphasis in family theory and research, family supports and services, family policy, and technology-based knowledge mobilization. In addition to School of Education and Department of Special Education core courses, students will complete a minor in research and will actively participate in technology-based learning including online communities of practice and a wide variety of innovative Web 2.0 technologies.
• Turnbull, A.P., Sailor, W., Turnbull, H.R., & Wehmeyer, M.L. (2006-2010).  Leadership and Outcomes in Education and Famliy Policy for Students with Significant Cognitive Disabilities. U.S. Department of Education, OSERS, OSEP Special Education Personnel Preparation to Improve Services and Results for Children with Disabilities Program. $800,000.
  This USDOE four-year leadership training grant focuses on preparing five national leaders to make substantial and sustainable improvements in long-term outcomes for students with significant cognitive disabilities and their families. Students will have a special emphasis in assessment quality, instructional quality, family support, and policy. Students will enroll in School of Education and Department of Special Education core courses, as well as complete a research minor. They will also engage in leadership practica associated with strategic roles at local, state, and national levels. To learn more, link to the Beach Center's Graduate Studies site. For further information contact Dr. Ann Turnbull (turnbull@ku.edu).
• Turnbull, H.R., & Turnbull, A.P. (2003-2008). Rehabilitation Research and Training Center on Policies Affecting Families of Children with Disabilities. National Institute of Disability and Rehabilitative Research. $3,749,737.
  This five-year research, training, and dissemination project focuses on a comprehensive study of the impact of two policies on families. The first policy is the individual/family control of Medicaid funding, and the second policy is Part C of IDEA in terms of the provision of family supports and services. Research is occurring at federal, state, and local levels in Kansas and North Carolina to particularly focus on the outcomes of family quality of life and family community integration. In addition to the research, extensive effort is being invested in developing Communities of Action to use the research results for system reform.

Legislation and Statements of Guiding Principles for Legislation

(major laws for which I was the principal policy analyst and draftsman, and consensus-based statements guiding laws for which I was one of the principal policy analysts and draftsmen)

• North Carolina Limited Guardianship Law, 1978-1979.
• North Carolina Special Education Law, 1978.
• North Carolina Mental Health Code, 1978-1980.
• P.L. 100-407, Technology-Related Assistance Act of 1988, introduced by Senator Tom Harkin as S. 2561 (100th Cong., 2nd Session)
• Model Disability and Family Support Act of 1991 (Garlow, J.E., Turnbull, H. R., & Schnase, D., Kansas Law Review, 39(3), 783-816 (used as basis for Part I, Family Support, 1994 reauthorization of Individuals with Disabilities Education Act, sunset in 1997; also used as basis for T. II, Developmental Disabilities Assistance and Bill of Rights Act, 2000).
• Kansas Guardianship Reform Act, 1997-1999 (introduced into 2001).
• North Carolina Family Support Bill, 1997 (incorporated into NC Budget Act of 1997).
• Model Statute/Technical Assistance Guideline on Positive Behavioral Supports (Turnbull, H.R. & Turnbull, A.P., 1997). Beach Center on Families and Disability, The University of Kansas, Lawrence.
• Lawrence, Kansas residential zoning ordinance, disability accommodations exception, 2001.
• Co-principal draftsman, Declaration of Rights of People with Mental Retardation, III Inter-American Congress on Mental Retardation, Buenos Aires, Argentina, August, 1986.
• Statement of Principles of Treatment for Newborns with Disabilities (1986) (consensus statement agreed to by major health-care providers and disability-advocacy organizations that became the basis for federal regulations implementing the Child Abuse Prevention and Protection Act and that arose from the decision of the U.S. Supreme Court, Bowen v. American Hospital Association, 1986, interpreting Rehabilitation Act Sec. 594 (“Sec. 504”) as applied to decisions-making regarding newborns with disabilities)
• Statement of Principles for Life-Sustaining Treatment (2005) (consensus statement agreed to by major disability-advocacy organizations that is being used for reform of state guardianship and medical-practice laws and that derives from the testimony I gave to the U. S. Senate HELP Committee [Health, Education, Labor, and Pensions] in April, 2005, following federal and state court actions in the Schiavo case [see immediately below]).
• Model Statute for End of Life Care and Continuing Treatment, prepared for ad hoc task force on guardianship reform, Kansas Judicial Council, 2005 (used as basis for guardianship reform statute, 2006 Kansas Legislative Session, and grounded on Statement of Principles for Life-Sustaining Treatment and, before that, my testimony to the U.S. Senate HELP Committee, April, 2005, referred to above).
• Consensus Statement on Family Support (2006) (prepared by participants in the Family Support Summit, January, 2006, Lawrence, KS and now being widely used by disability-advocacy organizations and associations of state service providers as the basis for dialogue around the reauthorization, in either 2007 or 2008, of the Developmental Disabilities Assistance and Bill of Rights Act, and around the direction of the Home-and-Community Based Waiver, T. XIX [Medicaid]), Social Security Act).
• Definition of Family Support (2006) (derives from work in the Family Support Summit, December, 2006, Lawrence, KS and now disseminated through Beach Center website to disability-advocacy organizations and associations of state service providers as the basis for redefining family support around the reauthorization, in either 2007 or 2008, of the Developmental Disabilities Assistance and Bill of Rights Act).

Legal Briefs

• Amicus brief (1985), in capacity “Of Counsel,” City of Cleburne, Texas, et al. v. Cleburne Living Center, Inc., et al, No. 84-468, United States Supreme Court (1984 Term), on behalf of American Association on Mental Deficiency, The Association for Persons with Severe Handicaps, American Psychological Association, American Psychiatric Association, American Orthopsychiatric Association, American Association of University Affiliated Programs, and The Council for Exceptional Children.
• Amicus curiae brief (1985), in capacity “Of Counsel,” Heckler v. American Hospital Association et al., No. 84-1529. United States supreme Court (1984 Term), on behalf of American Association on Mental Deficiency, the Association for Persons with Severe Handicaps, The American Association of University Affiliated Programs, and The National Rehabilitation Association.

Congressional and Other Legislative or Agency Testimony

• Testimony, 1986 FY Budget, Medicaid Waiver, T. XIX, Social Security Act, Senate Finance Committee, Fall, 1985
• Testimony, House Select Subcommittee on Children, Youth, and Families, Summer, 1985
• Testimony on S.10 (Civil Rights of Institutionalized Persons Act) to Senate Subcommittee on the Constitution, Committee on the Judiciary, Spring, 1979
• Testimony on P.L. 94-142 (Education of All Handicapped Children Act) to House Select Subcommittee on Education, Committee on Education and Labor, Fall, 1979
• Testimony on P.L. 94-142 (EAHCA) (proposed regulations) to Senate Subcommittee on the Handicapped, August, 1982
• Kansas State Legislature, Senate Local Government Committee, 1985, 1986, concerning proposed group home legislation (three oral presentations)
• Kansas State Senate Committee on Local Government, hearings on group home zoning, Spring, 1986
• Testimony on Rehabilitation Act Amendments of 1992, United States Senate, Subcommittee on Disability Policy.
• Kansas State Legislature’s Interim Study Commission, regarding positive behavioral support, 2003, 2004.
• Kansas Judicial Council, regarding death penalty and offenders with mental retardation, 2003, 2004.
• U.S. Senate HELP Committee (Committee on Health, Education, Labor, and Pensions: Hearing on Health Care for Non-ambulatory Persons, April 6, 2005 (the so-called “post-Schiavo” hearings on end-of-life care and continuing treatment).